Using clinical health data for better healthcare

Start Date: 09/15/2019

Course Type: Common Course

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Course Syllabus

An introduction to digital health
Everyone plays a role in health data
Interpret health data - turn information into new insights
Share and integrate data into practice

Deep Learning Specialization on Coursera

Course Introduction

Digital health is rapidly being realised as the future of healthcare. While this is placing emphasis on the input of quality health data in digital re

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Standards for Better Health Standards for Better Health were a set of standards for the National Health Service in England. The standards were set out by the Department of Health of the United Kingdom in a document of the same name published in 2004. NHS trusts had to declare their level of compliance with these standards to the Healthcare Commission annually as part of the Commission's "annual health check". The standards were replaced from 2009/10 by registration criteria established by the Department of Health and Care Quality Commission, which took over from the Healthcare Commission on 1 April 2009.
Health care analytics Health care analytics allows for the examination of patterns in various healthcare data in order to determine how clinical care can be improved while limiting excessive spending.
Clinical coder A clinical coder – also known as clinical coding officer, diagnostic coder, medical coder or medical records technician – is a health care professional whose main duties are to analyse clinical statements and assign standard codes using a classification system. The data produced are an integral part of health information management, and are used by local and national governments, private healthcare organizations and international agencies for various purposes, including medical and health services research, epidemiological studies, health resource allocation, case mix management, public health programming, medical billing, and public education.
API Healthcare The company also created the Healthcare Workforce Information Exchange (HwIE). The Healthcare Workforce Information Exchange (HwIE) facilitates the sharing of data between healthcare facilities, similar to the Health Information Exchange (HIE). However, rather than exchanging only clinical Electronic Health Record (EHR) information, the HwIE shares workforce data from an Electronic Employee Record (EER). Healthcare leaders can leverage the vast amounts of valuable employee-related data about individual healthcare workers and the entire labor pool to make proactive, evidence-based workforce management decisions. This data exchange delivers effective talent development and utilization across the entire care continuum, including hospitals and clinics, long-term care facilities and home health agencies.
Clinical data management The case report form (CRF) is the data collection tool for the clinical trial and can be paper or electronic. Paper CRFs will be printed, often using No Carbon Required paper, and shipped to the investigative sites conducting the clinical trial for completion after which they are couriered back to Data Management. Electronic CRFs enable data to be typed directly into fields using a computer and transmitted electronically to Data Management.
Health informatics Clinical research informatics (CRI) is a subfield of health informatics that tries to improve the efficiency of clinical research by using informatics methods. Some of the problems tackled by CRI are: creation of data warehouses of healthcare data that can be used for research, support of data collection in clinical trials by the use of electronic data capture systems, streamlining ethical approvals and renewals (in US the responsible entity is the local institutional review board), maintenance of repositories of past clinical trial data (de-identified).
Institute for Clinical Evaluative Sciences The Institute for Clinical Evaluative Sciences (acronym: ICES) is an independent, non-profit corporation that applies the study of health informatics for health services research and population-wide health outcomes research in Ontario, Canada using data collected through the routine administration of Ontario’s system of publicly funded health care.  
Clinical data management Clinical data management (CDM) is a critical phase in clinical research, which leads to generation of high-quality, reliable, and statistically sound data from clinical trials. Clinical data management assures collection, integration and availability of data at appropriate quality and cost. It also supports the conduct, management and analysis of studies across the spectrum of clinical research as defined by the National Institutes of Health (NIH). The ultimate goal of CDM is to assure that data support conclusions drawn from research. Achieving this goal protects public health and confidence in marketed therapeutics.
Campaign for Better Health Care The Campaign for Better Health Care (CBHC) is a coalition of healthcare advocates, labor unions, and nonprofit organizations working to bring a single-payer healthcare system to the United States. Based in Illinois, it was founded by Jim Duffet in 1989.
Center for Health Transformation Center for Health Transformation (CHT) was re-envisioned in 2012 by WellStar Health System president and CEO, Reynold Jennings, as a means to leverage the collective talent of various healthcare systems, which would collaboratively approach significant problems in healthcare. Jennings believes that transforming healthcare requires multiple, independent viewpoints that analyze case studies from dissimilar clinical silos.
Clinical pharmacy Clinical pharmacy is the branch of pharmacy in which pharmacists provide patient care that optimizes the use of medication and promotes health, wellness, and disease prevention. Clinical pharmacists care for patients in all health care settings but the clinical pharmacy movement initially began inside hospitals and clinics. Clinical pharmacists often work in collaboration with physicians, nurse practitioners, and other healthcare professionals.
Clinical data management system A clinical data management system or CDMS is a tool used in clinical research to manage the data of a clinical trial. The clinical trial data gathered at the investigator site in the case report form are stored in the CDMS. To reduce the possibility of errors due to human entry, the systems employ various means to verify the data. Systems for clinical data management can be self-contained or part of the functionality of a CTMS. A CTMS with clinical data management functionality can help with the validation of clinical data as well as helps the site employ for other important activities like building patient registries and assist in patient recruitment efforts.
Clinical Data, Inc Clinical Data Inc is a Healthcare IT Platform company based in the USA and operating internationally. It has developed a disruptive Clinical Data Standardization & Risk Monitoring Platform called Clindata Cloud. Clindata Cloud makes new drugs affordable by greatly reducing drug development costs and duration.
Clinical Practice Research Datalink On 29 March 2012, the Medicines and Healthcare Products Regulatory Agency and the Department of Health's National Institute for Health Research (NIHR) launched the Clinical Practice Research Datalink (CPRD). On the launch of CPRD, Sir Kent Woods, Chief Executive of the MHRA said, "The Clinical Practice Research Datalink will provide new data and research services that will improve the health of patients and also make the UK a world leader in life sciences research." David Willetts, Minister for Universities and Science, said, "The UK is a world leader in life sciences, but both the research base and industry tell us that we could make better use of data in order to drive medical breakthroughs. The Clinical Practice Research Datalink will provide researchers with access to safeguarded data that respects patient confidentiality. This will give valuable insights into serious health conditions and ultimately help reduce the time it takes to develop new treatments." The GPRD became part of the data services provision from CPRD.
GNS Healthcare GNS Healthcare is a privately held data analytics company based in Cambridge, Massachusetts with offices in Cambridge and Austin, Texas. Founded in 2000 by Cornell physicists Colin Hill and Iya Khalil, GNS Healthcare uses proprietary causal Bayesian network modeling and simulation software to analyze data for clients in the pharmaceutical, biotechnology, healthcare provider, health insurance, pharmacy benefit management and health informatics industries.
Healthcare Professionals for Healthcare Reform Healthcare Professionals for Healthcare Reform (HPfHR), is group of physicians, nurses, public health experts, healthcare economists, health information technologists, business leaders, hospital administrators, politicians, patients and many others who developed a 3 tiered healthcare system reform plan for the United States called The EMBRACE Healthcare Reform Plan (an acronym for Expanding Medical and Behavioral Resources with Access to Care for Everyone). The group claims that they are politically non-partisan.
JANUS clinical trial data repository Janus clinical trial data repository is a clinical trial data repository (or data warehouse) standard as sanctioned by the U.S. Food and Drug Administration (FDA). It was named for the Roman god Janus (mythology), who had two faces, one that could see in the past and one that could see in the future. The analogy is that the Janus data repository would enable the FDA and the pharmaceutical industry to both look retrospectively into past clinical trials, and also relative to one or more current clinical trials (or even future clinical trials thru better enablement of clinical trial design).
Clinical data management system At the end of the clinical trial the data set in the CDMS is extracted and provided to statisticians for further analysis. The analysed data are compiled into clinical study report and sent to the regulatory authorities for approval.
Healthcare Commission From 2006, an "annual health check" replaced the star ratings assessment system and looked at a much broader range of issues than the targets used previously. It sought to make much better use of the data, judgements and expertise of others to focus on measuring what matters to people who use and provide healthcare services. Trusts had to declare their compliance with the core standards set out in "Standards for Better Health", published by the Department of Health in 2004.
Clinical Data Interchange Standards Consortium The CDISC Operational Data Model (ODM) is designed to facilitate the regulatory-compliant acquisition, archive and interchange of metadata and data for clinical research studies. ODM is a vendor neutral, platform independent format for interchange and archive of clinical study data. The model includes the clinical data along with its associated metadata, administrative data, reference data and audit information.